The Human Immunodeficiency Virus
(HIV) infection remains as the most significant public
health issue in the world today. Most treatment
programs are sponsored through grants and donations
since the cost of care is extremely high. The support
programs too have changed with more focus on in
country home grown interventions. The experiences and
perspectives of caregivers of the children living with
HIV/AIDS shades light on the possible challenges
resulting from the loss of traditional sources of funding
for treatment and social support. The researchers sought
to outline the experiences and opinions of those who
cared for juvenile patients living with HIV/AIDS at Kisii
Teaching and Referral Hospital (KTRH).
Methods: A cross-sectional qualitative design with a
phenomenological approach was used. In-depth
interviews (IDI) were conducted on participants who
provided consent and met the inclusion criteria.
Potential participants were selected using purposive
sampling approach method from in-patient and
Comprehensive Care Centers (CCC). The IDI audio files
were converted into a Microsoft text document, and then
the text file was imported into the R version 4.0.2
program for thematic analysis.
Findings: Eight respondents that included both men and
women were interviewed and all had attained high a
minimum of high school education. The move from a
robust donor supported HIV care to decreased funding,
according to all respondents, is marked by great
difficulty. The lack of adequate funding has resulted in
the suspension of nutritional supplementation programs
and a drop in the interval of drug distribution from six
months to two weeks and negatively affects adherence
for clients who face challenges with repeated travels to
hospital to refill doses of treatment.
Conclusion: It was observed that a significant financial
and social disruption was encountered due to the
reduction in HIV care funding as evidenced by the
caregivers taking up the role to fill gaps in care that
includes out-of-pocket payments for drugs, supplements,
consultation and laboratory services. Most of these
services initially were supported 100 percent through
donor programs. The inadequate donor support for
HIV/AIDS programs hindered the comprehensive care
of children living with HIV and raised caregiver costs
thus putting a strain on the family support system.
Funding, HIV/AIDS, Pediatrics, Caregivers, Perspectives, Program.