Authors : Suriya S. R.; V. Sarveash

Volume/Issue : Volume 11 - 2026, Issue 5 - May

Google Scholar : https://tinyurl.com/axxxm5hu

Scribd : https://tinyurl.com/4e9jvhd9

DOI : https://doi.org/10.38124/ijisrt/26May1799

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Abstract : Background Tuberculosis remains a major public health issue in India. Treatment and monitoring systems have improved under the National Tuberculosis Elimination Programme however the daily experiences of family members who care for TB patients have not been thoroughly studied. They play a vital role in ensuring that patients get their treatment, receive proper nutrition and maintain emotional stability.  Objective To explore and interpret the lived experiences of primary caregivers of individuals diagnosed with pulmonary tuberculosis in South India.  Methods This qualitative study uses narrative inquiry to 15 primary caregivers of pulmonary TB patients registered under NTEP at selected Primary Health Centres and a tertiary care hospital in South India. In-depth semi-structured interviews were done. Audio recordings were transcribed word for word and analyzed using inductive thematic analysis.  Results Participants were aged between 24 and 60 years and included spouses, parents, children, siblings, and extended family members. “Caregiving in Tuberculosis: Navigating Burden, Adjustment, and Six categories were identified under a common theme "Caregiving in Tuberculosis: Navigating Burden, Adjustment and Transformation” :  Emotional distress and stigma after diagnosis  Restructuring of daily responsibilities  Financial strain and job disruption  Psychological and physical exhaustion  Coping strategies and resilience  Personal growth and meaning-making Although anti-tubercular therapy was free, indirect costs and psychosocial challenges impacted caregivers well-being.  Conclusion Caregivers of pulmonary TB patients face emotional, social, and economic pressure. Including caregiver support in TB control programs may improve both caregiver well being and patient outcomes.

Keywords : Tuberculosis; Primary Caregivers; Narrative Inquiry; Qualitative Research; Stigma; India.

References :

1. World Health Organization. Global tuberculosis report 2023. Geneva: WHO; 2023.
2. Thomas BE, et al. Stigma and TB in India: A qualitative exploration. Indian J Tuberc. 2019.
3. Datta S, et al. Caregiver burden in tuberculosis: A qualitative study. BMC Public Health. 2020.
4. Leung DYP, Chan HYL, Chiu PKC, Lo RSK, Lee LLY. Source of Social Support and Caregiving Self-Efficacy On Caregiver Burden and Patient’s Quality of Life: A Path Analysis on Patients with Palliative Care Needs and Their Caregivers. Int J Environ Res Public Health. 2020; 17:5457.
5. Bastawrous M. Caregiver burden – A critical discussion. Int J Nurs Stud. 2013; 50:431-441.
6. Pudelewicz A, Talarska D, Baczyk G. Burden of Caregivers of patients with Alzheimer’s disease. Scand J Caring Sci. 2019; 33:336-341.
7. Seo YJ, Park H. Factors influencing caregiver burden in Families of hospitalised patients with lung cancer. J Clin Nurs. 2019; 28:1979-1989.
8. Kimura H, Nishio M, Kukihara H, Koga K, Inoue Y. The role of caregiver burden in the familial functioning, Social support, and quality of family life of family Caregivers of elders with dementia. J Rural Med. 2019; 14:156-164.
9. Freytes IM, Sullivan M, Schmitzberger M, LeLaurin J, Orozco T, Eliazar-Macke N, Uphold C. Types of strokerelated deficits and their impact on family caregiver’s Depressive symptoms, burden, and quality of life. Disabil Health J. 2021; 14:101019.
10. Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver burden: A clinical review. JAMA. 2014; 311:1052-106