A Comparative Study on Social Support among Persons with Hemophilia and Healthy Controls


Authors : Deepika Lohan; Dr. Rajesh Kumar

Volume/Issue : Volume 9 - 2024, Issue 1 - January

Google Scholar : http://tinyurl.com/yans7kr6

Scribd : http://tinyurl.com/mr2mv4jr

DOI : https://doi.org/10.5281/zenodo.10522186

Abstract : Hemophilia does not only affect patients physically but also socially and psychologically. In addition to family and friends, their larger support system frequently consists of medical experts and other specialists. The important concern of the present time is to confront the psychological burden associated with hemophilia. The primary aim was to compare persons with hemophilia and healthy controls on Social Support. PGI Social Support Questionnaire (P.G.I-S.S.Q) was used as a tool. The sample of the investigation comprised 180 males, out of which 90 were persons with hemophilia and 90 were healthy controls. The data was collected from the northern states i.e., Haryana, Uttar Pradesh and Punjab. t-test revealed that there is a significant difference on Social Support. Persons with Hemophilia scored higher than Healthy Controls on Social Support. One-way ANOVA was performed to compare the effect of three different age groups among PWH and came out to be significant. Hemophilia Treatment centers ought to have social workers and psychologists on staff to provide both individual and group therapy to gratify the unmet needs of PWH and their caregivers.

Keywords : Social Support, Persons with Hemophilia, Healthy Controls.

Hemophilia does not only affect patients physically but also socially and psychologically. In addition to family and friends, their larger support system frequently consists of medical experts and other specialists. The important concern of the present time is to confront the psychological burden associated with hemophilia. The primary aim was to compare persons with hemophilia and healthy controls on Social Support. PGI Social Support Questionnaire (P.G.I-S.S.Q) was used as a tool. The sample of the investigation comprised 180 males, out of which 90 were persons with hemophilia and 90 were healthy controls. The data was collected from the northern states i.e., Haryana, Uttar Pradesh and Punjab. t-test revealed that there is a significant difference on Social Support. Persons with Hemophilia scored higher than Healthy Controls on Social Support. One-way ANOVA was performed to compare the effect of three different age groups among PWH and came out to be significant. Hemophilia Treatment centers ought to have social workers and psychologists on staff to provide both individual and group therapy to gratify the unmet needs of PWH and their caregivers.

Keywords : Social Support, Persons with Hemophilia, Healthy Controls.

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